Wednesday, July 16, 2014

Ear problems and blood work off

Jackson has been having trouble with fluid in his ears and hearing for a few months now.  His rhematolgist wanted the fluid taken care of over a month ago but of course its been a fight with the peditrcian here.  She wanted him on allergy meds first for awhile.  Well he went back in last week for a hearing test and fluid test and guess what theres still fluid!  If only she would have listened to me.  She kept talking down to me like I had no idea what I was talking about and the fluid would be gone.  Unfortunately for her I was right.  So Jackson will be seeing a ENT this Friday to get the fluid removed and possibly his 4th set of tubes!  Dr. Vehe thinks we should dig deeper as to why this keeps happening.  So he did some extra blood test Monday while we were there for Jackson's infusion.  Those tests came back fine however his routine blood work did not.  His albumin levels were low so he is sending some paperwork to Mayo here so he can get further testing on his blood and a urinalysis.  Its always something!
Jackson just turned 7 last Friday.  It is bittersweet for me as I love celebrating my kids birthdays but really feel sad that my kids are growing so fast.  We celebrated the day by going to the Wisconsin state fair.  Jackson had a great time and said it was the best birthday ever!