So today I recieved a copy of the referal letter the Opthalmologist sent to the rheumatologist that Jackson will be seeing in Minneapolis. After reading the referal it sounds like they are pretty sure Jackson has Juvenile Rheumatiod Arthritis (JRA). After trying to define all the medical words and doing my own research I am convinced he more than likely had JRA. He has a lot of the symptoms. JRA is a auto immune disease that is chronic that damages and destroys the joints. A autoimmune disease means the bodys immune system mistakenly attacks the tissues its suppose to protect. So I guess we will see and deal with it as best as we can. Thank you to those that pray and send thoughts to Jackson it is so appreciated!
Sara I bet you were a little shaken up after reading that. I know you were hoping it wasn't JRA. This is a bummer but at least you have the appointment coming up where you can get all your questions answered. This may be the beginning of a long journey for your family but you are a strong family & you are an incredible mom, I have all the confidence in the world that you can handle this. Jackson is such an awesome little guy, he's tough & he will do well. Thanks for the update & know he's in my prayers always! Hugs~Jackie & family
ReplyDeleteSara, Mike and Jackson-
ReplyDeleteI'm so glad you set up this site. I fight the urge to call you guys daily. I just know you're dealing with a lot right now, and probably a lot of phone calls. So, I will keep checking in and sending you all of my very best thoughts and lots of love. Also, can you send me a copy of the photo of him in the life jacket? It's spectacular. Love you guys! Jen
Thank you Jackie, you are so great to us!
ReplyDeleteJen so glad this site can help you stay update with living so far away! And you know you can call us anytime! I know the summers are your busy working season but we hope you can make it home to visit sometime soon!
Oh and Jen as soon as I develop some pics I will get you a copy. I am so bad about that I have months worth of pics that I need to develop! I really need to get better about that!
ReplyDeleteSara