Last month Jackson had a appointment with Dr. Vehe (rheumy), Dr. Bothun (eyes) and a infusion. His neurologist appointment was cancelled that day due to doctor having a emergency. Overall a disappointing day. We started with Dr. Bothun to check eyes. Both eyes still have cells and one of his eyes is worse than before. So we added another drop, one they have been avoiding because it shoots his pressures in his eyes way up but we are desperate at this point to quiet the eyes. Next we saw Dr. Vehe for the joints. He said his knees felt warm and was worried there may be a flare starting. But since infusion was schedueled that day we were hoping that would quiet it down. He did complain of his knees for a week afterwards but now this week he has been complaining of his left legging hurting. He did not sleep well last night and I think its because of his pain.
Otherwise he has been doing well and stayed fairly healthy this winter compared to last. He just started swimming lessons and will start tball in the next couple of weeks. Hopefully we can get his pain under control by then so he can enjoy playing!
Miracles DO Happen!
1 week ago