It was Jackson's birthday Saturday but unfortunately it was not a great birthday. Last week on Thursday Jackson got a migraine we alternated tylneol and ibuprofen for 3 days. He would improve at times for a few hours but then right back to pain. Friday night he came into our room crying in the middle of the night because of the migraine. On Saturday he was feeling a little better enough to go to chaos to celebrate his birthday and Fuji for dinner. Later Saturday night he started getting worse, I was up most of the night with him. He also vomited a few times throughout Saturday. Sunday afternoon I took him to the er because he couldn't stop crying from the pain and was becoming very lathergic. They gave him iv fluids, oxygen, anti nausea meds and pain meds and then discharged him. His pain was still not any better Sunday night and he was again up most of the night and extremely lethargic. So this morning Mike brought him back to the hospital. They ran some blood work and said he has lyme disease and because he immunocompromised his body just couldn't fight it so it made him very sick. They kept him for most of the today and gave him iv fluids and morphine and then antibotics through the iv. He is now home and resting and will be antibotics for 2 weeks to a month. He is still in a lot of pain and very lethargic. Hopefully he will improve soon.
His uveitis however seems to be improving. Last eye exam showed very minimal inflammation so we will be decreasing steroid drops over the next few weeks. His pressures were extremely high a month ago and those are now back down so that is great.
1 year ago