Saturday, November 13, 2010

Next iv infusion postponed at least a week

Jackson has come down with a cold and ear infection. The way his cough is getting worse I am afraid he may have pneumonia. But he just started a antibiotic last night for ear infection so if he does have pneumonia the antibiotic should take care of it. The poor kid just had the stomach flu a couple of weeks ago. Since its only Nov. I am afraid this is a bad sign of whats to come this winter thanks to drugs that supress the immune system! I talked to his rheumatolgist last night and we won't be doing his remicade infusion on Wednesday because of being sick. Because remicade is a immunosuprisive drug he can't get it while sick. We will reschedule for the following Wednesday the 24th. We are also suppose to see the opthamolgist on the 17th so not sure if we will just postpone that appt to 24th too so we don't have to make 2 trips. A few days ago Jackson's left eye was looking pretty droppy, the worst since he was diagnosed so i hope he isn't having a bad flare up! Well see. I have recently been added to a group on facebook of other people and mothers of kids with JRA and I am so excited to have become a memeber. I don't know anyone else with a child with the same disease and sometimes wish I had a support group and other people who know what I am going thru or have already been there and can offer advice and I have finally got that! Thanks to Amy for adding me to the group!
We got snow for the first time last night. When I got up for work at 5 this morning, Jackson got up with me and saw the snow. He was sooo excited he tore off his pjs and put his snow pants on and ran around screaming snow fall out of the sky! It was cute. In Minneapolis, where his doctors are, they got a lot more snow than we did and it makes me nervous about all the appts and driving in the winter. Its a hour and half drive each way and I am extremely nervous about it snowing on days we have appointments! I hate driving in the snow, it gives me extreme anxiety!

1 comment:

  1. I hate this time of year for that. :( I hope that the antibiotics help quickly, before he gets sicker!
    I totally understand what you mean about the AF FB page. My daughter was diagnosed in January 2008. I had a coworker whose daughter was diagnosed later in the year, but she is one of those that worries about it the same way that I would a cold. She was the only other one that I knew that had JA. Since then, my daughter has been diagnosed with Mixed Connective Tissue Disease, so she has a combo of poly-JRA, Raynaud's, Scleroderma & now Dermatomyositis. Apparently MCTD happens often enough in our kids, but these boards are the only place that you would find anyone else with anything like these diseases. I'm so glad you found us!